Monday, June 24, 2013

Checking in...


Where did June go?  The month seems to have disappeared before my eyes!  I guess I've been busy trying to balance cancer and chemo with what used to be my normal life and realizing that it doesn't work like that.  I had high expectations for everything I'd be able to do once I was done with AC, but the truth is, I'm still getting chemo treatments.  I'm not able to jump right back in to where I left off before this this thing called cancer entered my life.  This has not been an easy realization for me.  Its hard to not overdo it, but my body very quickly reminds me when I'm nearig my limit.  The nausea is mostly gone, it pops up sometimes right after treatments, but is nothing like I had been dealing with.  The fatigue is better,still there, but different.  It feels good to be tired from housework, getting projects done and going to work rather than moving from my bed to the couch.  

I realized I hadn't posted an updated when I started getting emails and some comments asking how things were since I hadn't posted in a while!  I've had four treatments since my last post! My younger sister, Ali was in Minnesota for a couple weeks and was able to join me for a treatment.  Ella wanted to be my chemo buddy,so she and my mom were able to come sit with me after Zoo Camp one week.  The next week I was so tired and decided to fly solo.  I slept through most of the treatment.  And again when I got home.  My hemoglobin is still low, it actually dropped a little from last week.  They ran some additional blood tests this week to check my iron levels and other things.  Nothing earth-shattering there.  It's teetering in a place, where if its drops a little lower, they could do a blood transfusion and that would bring my hemoglobin up.  I'm hoping to get it up without needing to go to that extreme, but I am really tired of being tired.  My cold is finally starting to clear up.  I had a chest X-ray done a week or two ago to make sure my lungs were clear.  When I saw that X-ray, I laughed out loud!  Between my port, the expanders and the marker they placed where they removed the cancer, there is a lot on that X-ray! Additional labs were drawn to check my iron.  That fell in the lowest range of normal.  My new sister-in-law, Meghan, was my chemo buddy today!  She and Todd are in Minnesota for their reception and will be heading back to Phoenix after the 4th.  

       

Being back at work is going well.  Thanks to all of you for asking! Four hour shifts was a good place to start.  I'm still exhausted when I come home, and can't quite imagine working 8 hours yet.  I had lat week off and it's was good to rest and get some things done around the house.  It takes me double the time to do things now, allowing myself to rest in between tasks.  I'm trying to be patient with myself.  

Specific prayer requests would be for my hemoglobin levels to continue to go up and for more energy. Pray for a strong immune system.  I feel another cold coming on. As well as for patience as I try not to overdo things!  Please also pray for issues with my insurance company.  Among them, the hold up of processing claims from surgery back in March due to the extra night spent in the hospital due to intractable emesis.  Pray for speedy processing and full payment from the insurance company!

This week I've spent a lot of time thinking back over all the events leading up to where I am now.  The shock and newness has worn off and I look ahead to all the chemo treatments and radiation treatments still to come and find it all very daunting.  It's very routine by now.  But I can't seem to figure out how to emotionally return to my normal routine while adding the cancer treatment routine to it.  It's two worlds that I'm having trouble mixing.  Especially when I don't have the energy for normal.  Except for tonight. Thank you steroids!

This summer has been fun so far though!  My goal is to focus on Ella and make it enjoyable for her.  Her knowledge, understanding and resilience has been amazing to watch, but this summer is all about being a kid!  I'm loving being able to check things off our summer list (and adding some we did, just to check them off). Here are some pictures of my pride and joy to look at.  Or not.  It's up to you!


       




 

Wednesday, June 5, 2013

This week. In a nutshell.

Monday marked the beginning of the end.  I started new chemo drugs, Taxol and Herceptin (TH).  Taxol will be over and done with in 12 short weeks.  Herceptin will be by buddy for the next 52 weeks. One year from now, I will be finished with chemo!   After the 12 weeks, I will only go in every three weeks for the Herceptin.  I can see the next year shaping up with radiation and reconstruction and starting what will be my new normal. My older sister Jamie is home for a week from Missouri and was able to join me for treatment this time.  Like I have been since I started chemo, she was impressed with the friendliness and compassion of all the staff and volunteers in the Cancer Care clinic. I'm in good hands!

        
  
I'm still really tired.  My labs were at an all time low on Monday, which is to be expected following four rounds of AC.  Dr. Shanks wasn't alarmed, but until they sart climbing a little bit, I'll still be dealing with fatigue.  My weakened immune system is trying to fight a cold, but isn't doing too great!  Last Friday I had another MUGA scan to see if there had been any changes to my heart function following the Adriamycin, which is not a heart friendly drug.  There were no changes, which is an answer to prayer!  I'll still have MUGA scans every 3-4 months while on Herceptin as this also is not a heart friendly drug.  

On Tuesday I went back to work.  I've only been cleared to work 4 hour shifts at this point and will fill in the rest with PTO to have enough hours to keep my insurance.  I am so grateful for Catherine, my job share partner, who is willing to be so flexible and work with me and my limitations and doctors appointments and radiation schedule so I can still focus on my treatment and getting better.  Thank you, Catherine!  You are a blessing!

My friends from small group had a lovely bouquet of flowers sent to me while I was at work, knowing I wasn't quite ready to return to work.  That was a wonderful surprise and definitely a day brightener. Thanks you guys, you're the best!  I love that you have decided to reach out and to commit to help me succeed.  And as I strategically unpack all the things that I appreciate about you all, it's a win-win.  

Wednesday was Ella's kindergarten graduation.  We are definitely proud parents!  We are in awe of the person God is shaping her into.  Her compassionate servant heart humbles me daily.  Her desire to do the right thing even when no one is looking is evidence of the Holy Spirit active in her life.  She's a smart little cookie, which I'm sure can be explained by having a teacher for a mother (or Aunt Jamie's genes, or having been born into a family of teachers). She's still sticking to the same career goal going on three years now.  When she grows up, she doesn't want to be a teacher (even though she has an entire classroom set up under her loft bed and plays school for hours at a time), or a singer or a dancer or anything else little girls want to be at that age.  She wants to be a spy.

         
   

We celebrated the end of the school year with lunch at her favorite restaurant (we are so grateful it is no longer McDonalds) with my whole family, a Mint Oreo ice cream cake (from DQ of course), a Jamie Grace concert, and we let her stay up as long as she wanted.  Which was a whole hour pat her usual bed time.  Next year is first grade...eek!  All day, everyday.  That will be a very tough transition!

                       
      
The garage sale was this weekend and was a great success.  Thanks to all of you for your donations!  I was finally able to part with Ella's clothes and baby things.  Rick has been so understanding as the 12+ totes of "doll clothes" piled up in the garage since I was not able to part with them.  I must not have gotten my fill of playing with dolls when I was younger, so from birth to age 3 (when Ella developed a strong fashion sense of her own), she was my doll to dress up!  Maybe now we will be able to put things in the garage that actually belong there, like another car!  A huge thank you to my mother in law, Linda,  and my neighbor, Sophia, for making the garage sale happen.  Sophia will pricing things in her sleep for the next month!  And thank you to Nancy, Nancy and Lori for all your help, we couldn't have done it without you!

It's hard to tell if I had any side effects from the new chemo drugs on Monday since this cough and cold had me down for the count.  I go back again on Monday for the next round...51 weeks left, not that I'm counting or anything!


Monday, June 3, 2013

Remember that Time I Slept for Two Weeks...

This last round was the worst.  By far.  Even with the steroids, the nausea and fatigue came on strong and hung on long.  I've never been so thankful for crackers and ginger ale.  I didn't even get a good week this time around.  But I am so thankful that the worst is over.  Today I start two new drugs.  So I will be going in every Monday for 12 weeks.  That should be fun!

I go back to work on Tuesday. I'll start out with short days.  Yeah.......

 May 24th was me and Rick's ten year anniversary.  Woot woot!  We obviously didn't get to celebrate in Hawaii as we'd planned all these years, but spending the day together, living our lives such as they are at this point was still wonderful.  We dropped Ella off at school, went to breakfast, I slept while he puttered and tinkered, I slept in his truck while he drove up north to get a part and then stopped for dinner on the way home.  Marriage isn't always beaches, sweet smelling plumeria and luaus.  For us, these last couple years have been really trying.  Infertility. Unemployment. Cancer.  However, our cord of three stands is still holding strong.  And somehow, these last few years have been a blast! In the midst of hardships, we've found joy.  We find complete joy in raising the child we do have and absolutely love our little family.  Rick losing his job turned out to be a huge blessing.  Leaving a job he didn't like for one with better hours, better environment, better management, more flexibility and free ice cream, it makes sense!  In the midst of it it didn't seem so great!  That's when I learned that you have to thank God for what seems bad along with what seems great, because in the end you really can't tell the two apart!  When it's all said and done, the blessings and joys that came our way because of cancer will far outweigh the chemo side effects.  Oh, and just so you know, Rick will have been at his new job for a year in the middle of June, and he has not gained a pound.  He hasn't gained weight since I met him, but I thought for sure this would do it!  Still praising God Ella seems to have gotten his metabolism! So, Rick. We've seen richer or poorer, in sickness and in health, good times and bad-thanks for taking our vows seriously!  Thank you for loving me and serving me for the last ten years.  Thank you for your extreme patience and for making me laugh daily. Thank you for being with me through every step of breast cancer, there could not be a better companion for this journey!  Thank you for being an amazing Dad to Ella.  You really blew me away with that one the second she entered our lives and continue to every moment you spend with her. I have never questioned your love for me or your love for the One who brought us together.  I love you beyond what words can describe.  You are the best Hawaiian souvenir ever! Can't wait to go back to Hawaii when all this cancer stuff is behind us!  For the rest of you-a wedding picture!  Because everyone likes looking at ten year old wedding pictures!

                        
         

I think I've told half the world already, but have to share it here too.  I was gone over the weekend for some R&R and came back to some gifts from Ella. The last one she had even wrapped.  Before giving it to me she says, "Mom, you are going to get a kick out of this."  I unwrap the little package and hold in my hand this gift my 6 year old bundle of energy could not wait to give me.  She explains it a little further (although no explanation is needed). "I made it for you.  She looks just like you."


                                      

When she says made it, she means she ripped the hair off!  Happy Monday!
   

Monday, May 20, 2013

Last Round of the Red Stuff!

 Today was the last day of AC chemo!  I had to capture the last push of that nasty, life-saving poison!

                                        

I found out that, unknowingly, I have been over-dosing on my anti-nausea meds (not my fault, believe it or not).  There's a good chance that was contributing to my extreme mental fog.  I can't blame it all on that though.  I haven't taken Zofran for several days and today after my series of naps, thought I could make a trip to Target to pick up the over the counter steroids that I caved and asked for and then to Cub for some basics and a Red Box rental. While at Cub I remembered that I had forgotten to stop at the pharmacy.  Back to Target.  While at Target, I remembered that I forgot to go to go to Red Box.  Back to Cub.  Ended up with four movies.  Don't ask.  After all that driving I had to get gas. Wow. Gas prices. That is all.

                           

Then I jumped back in the car to get back to my mom and Ella.  So I drove to my mom's house.  Then I remembered they were at my house.  Rick is out of town for work tonight, so my mom locked me in before she left.  She is a very smart lady.

Chemo was nice and smooth today.  The infusion center got new chairs.  They are heated, massaging recliners. Very, very nice. Kara came with me today and kept me talking way too much!!  She is always so entertaining!  

                            

The chemo nurse must have overheard Kara and I's conversations ( it was pretty quiet today, the whole room probably heard us) because when she came in to push the Adriamycin and then later to hang the Cytoxin, she prayed that it would find the remaining cancer cells and attack them and miss the healthy cells.  I loved that!  She was new, I really liked her.   I always get excited when I hear people are praying for me.  At church on Sunday, at that usually awkward greeting time, I "met" somebody that I've known of for years, but our paths have honestly never crossed.  I knew her name so I was able to use it.  She asked my name. Then she asked what my last name was.  I saw something click, and then she responded with excitement, "I've been praying for you!!"  I tried so hard not to cry, but can't get over that people who have never met me are praying for me!!  

And then there is the Hill Family and company in Tennessee that is letting God use them in a God-sized answer to prayers.  Part of my heart has always been in Tennessee. Uncle Stan and Aunt Bunny live there. Everybody should have an Uncle Stan and Aunt Bunny in their live!  So does my cousin, Kevin, who has the coolest life.  He's a fireman turned air-traffic controller and the sweetest man-boy there is.  He will always be the boy that let me give him a makeover! He didn't stand a chance with a sister and three female cousins at holidays!  Get this, he just got back from a week long soccer tournament for air traffic controllers in Ireland!  So does Laura.  You know that friend (that is also family) that you don't get to see. Ever. But you pray for and think about all the time?  And when you do talk and finally get together, not a moment has passed? That's Laura.  I really hate that we live so far apart.  We were in each others weddings (Happy Anniversary Michael and Laura! Grateful that I was able to be a part of it!  Great memories! I pray that God continues to strengthen your marriage as you look to Him for all things and blesses you and your family as you have so richly blessed us!) and just don't get to see each other enough now that we're all grow up!  So sweet, sweet Laura married into the Hill family.  They have a family business.  They have used that business to bless our family.  I told Michael that a cancer diagnosis, double mastectomy, going bald and living in constant nausea and fatigue for days on end (combined) haven't reduced me to the puddle of tears that this generosity has!  So now, more so than ever, part of my heart stays in Tennessee with my family and now my cousins family! Want to know the kicker?  I've only met the Hill family once.  At a wedding. Yes. God is that good.  

                      

Time for bed.  Remind me to tell you about God's next assignment for me!  It's a good one!  
     

          

Wednesday, May 15, 2013

Encouragement Just When Needed

This last round of chemo kicked. My. Butt.  The nausea started sooner than it had during the first two treatments and lasted a whole lot longer.  I appreciated that Zofran could be taken every four hours and I took full advantage of that.  The fatigue also lasted longer.  This was extremely frustrating and I had to constantly remind myself that its okay to not be uber productive, my priority is getting better, I need to take care of myself...blah,blah, blah.  Doesn't make it any easier.  But it's true.  

Sunday was the Race for the Cure.  It was a little bit of an emotional day.  But it was mostly just a fun day!  Team Melissa was a huge encouragement!  How did I get such great friends?!  


              
                       
    

 God knew I needed a little pick me up.  Enter Wednesday mornings!  This group of women encourages me so much, loves on me so much and gets me smiling so I can't stop!  Today was no different!  We had brunch.  The food was amazing.  Seriously so good.  A carbivore's paradise!  Then they had to go and give me a quilt. A homemade quilt.  Each fabric perfect for this season of my life.  The best part?! They signed it.  I didn't read it  until I got home later, which was good since I didn't put on my waterproof mascara this morning.  The words of love and encouragement were so refreshing.  As I think about finishing my last round of AC chemo on Monday, it's one more phase done, but there is so much to come and knowing these women will be there to support me, love me and encourage me through the times when I just don't want to do it anymore is a great antidote to chemo!

A couple of you have asked how to order thirty-one bags....go to www.mythirtyone.com/jborganize101
Then click on My Parties on the top of the page.  Then click on the May Fundraising Event.  There you go!  I love the large utility totes for just about everything.  The deal for the month is spend $31 and get 1/2 off thermal bags.  I'll be using mine for the fresh market thermal....great for Trader Joes!  

Thanks to those of you that have dropped off stuff for the garage sale.  If anyone else has things left over from their Woodbury garage sales and want to get it off our hands, bring in on down!

Ella has her Spring Fling gymnastics meet this weekend.  She has been working so hard and we are so proud of her!  Enjoy your weekend!

Wednesday, May 8, 2013

3 down, 1 to go

I'm about to slip into my chemo coma for the next several days!  Chemo on Monday was the quickest in and out yet.  My labs are still staying in the range for "normal" women, and the doctors are encouraged by that.  This was my third out of four treatments for this first phase with the the AC drugs (Adriamycin and Cytoxin).  After the fourth AC treatment on May 20th, I will start two new drugs, TH (Taxol and Herceptin) on a weekly basis for 12 weeks.  The TH drugs aren't as harsh as the AC so I won't have to "recover from chemo".  Looking forward to that!  Especially considering that my short term disability will be up in June and I'll have to start working again. Not really looking forward to that.  Hoping that my new chemo brain is a result of the AC and my mind will start to clear!

I did find out that my cancer was categorized as Stage 3 breast cancer.  I might have heard that before, but am not retaining information as well as I'd like! I was always hoping for Stage 2, but I'm sure the size of the tumor pushed it over the edge!

I also found out that I haven't been taking the standard 3 day post chemo oral steroids for nausea. I get the steroid through an IV at chemo, but that's it for steroids for me.  I dragged my friend Jill along with me to this treatment and she was as entertained as I was every time I was asked if I needed a refill for the steroids I have not been taking!  So I guess it's a really good thing that I'm able to keep the nausea under control with just the Zofran.  I chalk it up to all your prayers!  Keep 'em coming.  Especially for the remainder of the week as I drift in and out of consciousness!

Sunday is the Susan G. Komen Race for the Cure and I'm hoping to be alert enough to cheer on those running on Team Melissa and possibly even do the walk with Ella.  I keep being told what an amazing and emotional time it will be, and I'm looking forward to it!  

Thanking God for all my friends and family and prayer warriors committed to helping me get through this.  I couldn't do it without you!

                                         

Sunday, May 5, 2013

Almost Normal

The last week and a half has been so much fun. I was able to resume almost all of my normal activities and while for just a brief amount of time, I felt like a normal person. I was able to drive Ella to school and pick her up and even go on a field trip with her class. I was able to meet friends for lunch and go to Target all by myself. I was able to go to church and see my Wednesday morning women and go to small group. All of these things were followed by naps, but they still happened. Small victories! During all of these things, I got to wear my new hair! Those closest to me knew it was a wig, but some were quite surprised to find out it was a wig! I finally got it to be just how I wanted it. It's my dream color and I love the cut, it's actually comfortable now that my five o'clock stubble is falling out. Getting ready for the day is so quick and easy, I may just consider shaving my head when my hair starts to grow back and keep wearing the wig. It takes Rick longer to get ready in the morning now!

I'm going to enjoy my last day of normal before my next chemo treatment Monday. Tomorrow. In my post-chemo fatigue when I can't focus to read and don't have energy to get out of bed, I started watching a TV show that I quit following a while ago. Yay for Netflix! One of the characters on the show had breast cancer. So in a matter of a few episodes, she was diagnosed, had surgery, had chemo and was declared cancer free and celebrated with a trip to Hawaii. Never have I been so frustrated with TV. Well, except for the time that I was watching TV in junior high and didn't like the writers take on a scene, so I threw a spoon at the screen. But in this situation they made the whole process seem so quick, and it really isn't. I feel like I should be half way through everything now. I'm only halfway through the first phase. There's another 12 weeks, another six weeks and then forty weeks! And then a six month wait. As much as I want this time to fly by, I know that when this is over, Ella will be 7 and in first grade and I'll want time to slow down. Their fictitious TV trip to Hawaii was also rubbing salt in my wound! In a few short weeks, Rick and I will be celebrating ten years of wedded bliss. We pretty much met and started our relationship in Hawaii and went back three years later for our honeymoon. The plan had always been to go back for our tenth anniversary. That won't be happening this year. We're postponing the trip a year and will combine celebrations; end of chemo and eleven years of happily ever after. So the moral of this story: don't believe everything you see on TV!

During this short break, I've also discovered that chemo brain is a real thing. My mind is not quite as sharp as it once was. Funny how many of the same side effects of chemo are so similar to those of pregnancy, but I don't get a baby as a prize at the end! Not much to report, just wanted to pop in and say hi! You all have been so encouraging to my family and me. I need it. I really don't want to go to chemo tomorrow. There will be feet dragging and maybe a little pouting!

Two things before I go:

1. Jodi wanted me to let you know that she has extended her thirty-one bags fundraiser into May so we can get some of the new prints and take advantage of the May special. If you're needing to add to your bag/purse habit, here's what you need to know:

"Thirty-One Gifts Fundraiser for Melissa!! It's the NEW Summer catalog, complete with New prints and items. All perfect for your summer outings, that will carry you through the fall!
Please log onto my site and order right on Melissa's Fundraiser.
I had so much fun in April I decided to do it again, and reach the goal I wanted for her!!
In case you are not familiar, with the fundraiser. There is a lovely young lady at my church that is going through Chemo for breast cancer. I wanted to help her and her family out by doing a fundraiser. BUY LOTS!! It's all going to Melissa!" The special this month is 50% off any thermal with every $31 you spend.

www.mythirtyone.com/jborganize101

I have received several bags as gifts and LOVE them! My favorites are the three that live in my car, the one that comes to chemo with me and the one that organizes my Wednesday mornings.

2. Rick's family and my neighbor are planning a garage sale to help us out. So if you're in the area and have stuff that you want to donate to the cause, you can call Linda @ 651.459.0700 or Sophia @ 612.961.0445 or you can shoot me an e-mail (melissa.borner@gmaildotcom) and I can let you know where to drop off. The garage sale will be June 7th 8-5 and June 8th 8-3 at Rick's parents house. 8601 Lamar Avenue S in Cottage Grove.